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Symmetrical muscle aches

Bones, Joints & Muscles | Last Active: Dec 24, 2022 | Replies (5)

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@sueinmn

Hello @rjs64 and welcome to Mayo Connect. We are a community of patients and caregivers who support one another on our journeys. If you have done much reading here, you will have seen people advise you to "Stay away from Dr Google" - he will just scare and confuse you.

First, let me say you can let go of your fear of ALS since all the findings say your strength and endurance and your emg's appear normal - those are the first signs of it, before fasciculations.

Once disease is ruled out, you need to start considering lifestyle, sleep, diet, beverages, smoking (by you or around you) and environmental factors. Don't conclude, or let anyone tell you, that it is "all in your head" - here is a reason you hurt.
Sue

I assume these have been checked, but certain vitamin & mineral deficiencies and an overactive thyroid can cause your symptoms.
So can a lingering virus, even a mild case. Or stress - a new job, residence, kids moving in or out, loss of a friend or relative.
Or it could be an allergic or inflammatory response to something in your home or office - even as simple as a change in detergent, a new pet, new car, carpet or furniture "off gassing" chemicals. Or a gas or carbon monoxide leak in home, care or workplace...

Now it is time to play detective and look at other causes for the pain. What have your doctors suggested as the next step?

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Replies to "Hello @rjs64 and welcome to Mayo Connect. We are a community of patients and caregivers who..."

Thanks for your reply Sue. Yes, I fear als because of my symptoms of muscle ache, or burning, and lots of faciculations continue and are getting worse. Fasciculations started about a month after the limb soreness began. They too are random in both severity and location. Of late, I’ve even had some full muscle jerks or spasms the arms and legs. This is odd as the muscle feelings are symmetrical and come and go. For example both thighs might burn, or both firearms, or both feet or both thumbs. I do have anxiety and am taking meds for it, have for 20 plus years. This is not good when I don’t know what’s causing these things. Saw a neurologist a month ago and all in office tests were normal. I’ve had a full scope of blood tests (all normal) and an emg of arms and neck. Also normal.

Re next steps. The myleographer suggested the legs be tested with emg although he didn’t expect a different result.

Seems to be a wait and see with physicians. Kinda makes sense as I don’t have weakness. Maybe that develops? I don’t know, when your muscles are denerving, is weakness a gradual or sudden thing?

I’m going to try massages tomorrow.

Other than that I’m open to suggestions, and reassurances given my symptoms. Many thanks in advance.