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PMR - How will I know I am in remission?
Polymyalgia Rheumatica (PMR) | Last Active: May 12, 2023 | Replies (43)Comment receiving replies
PubMed had a paper of a very small study done on people with PMR who had flared while they were taking steroids. Interestingly, they all showed an increase in the cytokine, IL6. I mention this because MSM, a supliment that is considered safe and easily obtainable, is known to down regulate IL6. I think we all should all be taking it, but that is just my opinion.
Replies to "PubMed had a paper of a very small study done on people with PMR who had..."
Glad the MSM is working so well for some people. I tried it, and it really upset my gut in spite of starting it at a very low dose. Wish I could take it.
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IL-6 regulation is an interesting topic. I take a biologic called Actemra which is an IL-6 receptor antagonist to control my symptoms of PMR along with other autoimmune problems. I was able to taper off prednisone after taking it for 13 years of PMR. Now I want to wean myself off Actemra even though I haven't had any side effects. I have tried stopping Actemra but my symptoms return.