I am interested in hearing from anyone who has an insulinoma neuroendocrine tumor.
I have been under chemotherapy since July...was also on afinitor(everlimous) but had to stop that for now because or side effects. This week will be my 12th infusion. Was not a candidate for surgery at the onset..hoping down the road. along with radiation for the liver lesions. They want to keep going with the chemo as long as it is working. The sugars have been a job in itself trying to manage!