Hi Sam. Sorry you and your wife are having to deal with a stage 4 MBC. I received that same diagnosis 1 1/2 yrs ago, a recurrence from 2006. I’m mets to the bones (everywhere, mostly pelvis, legs, spine) and liver. My onco said that I lite up like a Christmas tree on my first PET scan. At that time my 27/29 was in the 2000’s. We got it down to the 600’s pretty quick with Ibrance/Faslodex, and when they stopped working with Afinitor/can’t recall the combo (post menopausal meds). The 27/29 never went below 300’s. We use the 27/29 as an indicator only and rely on a scan of some sort for a diagnoses. I’m curious that your onco is using CT scans whereas mine relies on PETs and your wife and I have the same diagnosis? If you think the CT is possibly missing something you could ask for a PET.
Fatigue is a constant (extreme) and I agree with another reply that it comes from a combo of the meds, pain/extreme discomfort, and in my case the inability to walk well let alone exercise. I don’t think there’s much that can be done to improve fatigue. It was suggested to me that I might be depressed which wasn’t the case but I can certainly see how it’s possible. All the best to you both.
Adana

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