Peggie,
It wasn't until after I made my post that I saw yours-I'm still learning how to navigate this site. Thank you for your kind reply, it was encouraging, as far as the CA not being very trustworthy, especially when I read that most women's numbers are in the low double digits. My wife, Jen, will be 61 in Feb., her pain is all over; joints, spine, ribs, hips, metatarsals, etc., the most severe pain recently is at the base of her skull and throughout her cervical spine. Being that most of the cancer is in the spine and that she had the fractures, nerve pain is a huge possibility, she tried Gabapentin, but didn't like the side effects. At diagnosis she had multiple compression fractures in her spine. About 8 months ago she went to see a rheumatologist, he prescribed Diclofenac, the assumption was that as her bones were healing from the treatment it was causing arthritis, the diclofenac has helped. Her last Onc. appt. was almost two weeks ago, she is waiting to hear back from someone to get a consult on radiation, my concern with radiation on the neck is that the esophagus is so close, but I'll wait until we get a consult so that I can get fully educated on the pros and cons of the procedure. How long ago were you diagnosed ? I'd love to hear if the radiation on your femur helps. May I ask if you have LDH and CEA tests as well, if you don't want to share-no problem. Jen's LDH was 1000, and the CEA was 13 on her last visit. Thank you again, Sam
Hi Sam. I'm so sorry your wife is going thru such issues; much more than I had imagined. Having a bit of her history now it becomes much clearer. I've had the same base of skull and C2 - C7 issues. They have waffled between 2 spots that lit up on my bone scan, thinking metastasis to arthritis. I also have compressed discs but have not, thankfully, suffered any fractures. I don't have any real experience in that area but it sounds like her doctors are on top of it with treatments to try to control the pain. As far as the radiation, they were thinking of doing my neck but decided to wait and see if there are any changes. They had forewarned me that there would be some temporary side-effects to the Esophagus (a couple weeks of a burning type feeling). I know others who have had radiation to other areas of the spine/ribs that unfortunately have that same effect along with some heartburn type feeling. We are all different though and as such may or may not suffer the same effects.
I do not have LDH or CEA tests. Also, I was diagnosed stage 4 in April of 2019 although I had never been early-stage.
Feel free to communicate if you like or if your wife would like someone to talk to.
Peggie