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DiscussionAnyone here with Hurthle Cell (Oncocytic) Carcinoma?
Thyroid Cancer | Last Active: Jan 19 8:13am | Replies (62)Comment receiving replies
Replies to "I am sorry to hear the HCC spread beyond the thyroid. I am sure this is..."
This is a condensed version of my husband's experience. His was first discovered in September 2005 at age 34 during a procedure to remove what they suspected was a "cyst" in his neck. He had a multinodular mass measuring 9.2 x 9.0 x 2.4 cm, later identified as Hurthle Cell. He had two surgical procedures; the second was quite extensive as the tumor was invasive to strap muscles and the esophagus. Thyroplasty was performed to improve damage to the voice box, followed by 28 radiation treatments. In December '09, he had a recurrence requiring another extensive surgery/neck dissection and radioactive iodine therapy. In 2011 they found that the HCC spread to his lungs, and they did bilateral radiation. In September 2015, another recurrence in the neck required another 33 doses of radiation. Since then, they have been monitoring tumors in the lungs and the area of the internal carotid artery. Because of repeated radiation to the areas as well as multiple surgical procedures to the neck, they are just watching the areas. They will not treat it unless it becomes vital.
The most recent biopsy last month confirmed HCC in the rib bone. As of now, we believe the plan will be to do some type of pin-point radiation to the bone.
In these past 17 years, he's never gone more than six months without an in-person appointment and scans (they would rotate between PET & MRI and always did an ultrasound) with his doctor.
Ask a lot of questions and report anything that is even slightly out of the norm. When his cancer recurrence was discovered in 2015, it was because I brought up to the doctor during his checkup that my husband mentioned to me that his tongue felt twitchy and he couldn't roll it. This led to additional scans that day and the findings of tumor.
You stated that HCC will spread is just a matter of time.
Can you point to where you heard or read this? My doctor believe HCC is fully curable. I’m not disputing your comment,I’m just trying to fully understand what I’m up against. There is so much information and i can’t figure out the truth. Hang in there!
Did you ask for another opinion
Me l got carcinoma in my write lob and l
Have a lobectomie one month ago and now I’m waiting for the oncologist to call me if l
Need chimo or radiation or nothing but it’s scary and l understand you me l
Try to be strong for my children and me be it’s hard but l stay positive
Good luck stay positive