This has been a journey. went from 146 lbs. in January 2022 to a current wt. of 112. This started with Endoscopy and colonoscopy showing Gastroparesis, gastritis and a SIBO infection. My GI tested me for endocrine tumors which were negative. PCP group was just sitting by with no idea except that I came to the ER too often. GI suggested I get a long term + ANA investigated. I did and some labs were abnormal. I had no idea that my Sjogren ANT was negative. Meanwhile, after several falls and night sweats with a crazy TSH going from5, to 15 to 34, I go to a local rehab hospital with dehydration and weakness. The rheumatologist call me to DX me with Sjogren. I am placed on Plaquenil and for unmentioned reasons I change rheumatology. This group is concerned about how frail I am and my neurological symptoms. EMG shows no big deal except a bad R shoulder, now known to be calcific tendononis. Three ER visits later for eye infections, I off Plaquenil and my sight is decreased quite a bit. I rely upon Sjogren foundation and find a rheumatologist at U. OF Pa. Currently, I am scheduled for a lip biopsy on Dec. 29th. I have had home OT, PT and speech therapy. Pain management manages my pain. My depression is quite awful. I wish I had the money to go to Mayo Clinic where a team works together. I have been a nurse since 1974 and that was what I was taught. I would appreciate feedback on this story and my illness. My. name is simply Lucy.