Carolyn - thank you so much for sharing all the details of your efforts. Being proactive and doing everything I can is critical for me to feel like I have some degree of control over how my life will go. I'm not someone who can just let the doctor do all the heavy lifting and cross my fingers it will all work out.
I've had periodic acid reflux for years and am concerned that may be a key to why I got this as I don't fit any of the other characteristics that seem to be relevant to cavitary MAC - Not male, never a smoker, no other lung conditions, no immune deficiency issues that I'm aware of...I watched a YouTube video put out by National Jewish Health on Acid Reflux. First I ever heard that PPI drugs like Nexium address acid production but NOT reflux per se, but it makes sense. Something as simple as elevating my bed seems like a no brainer!
Can I ask...how often do you replace the filter in your LifeStraw bottle?

Thanks, MC

Jump to this post