Connect
← Return to Life Expectancy with cavitary MAC
Discussion
Life Expectancy with cavitary MAC
MAC & Bronchiectasis | Last Active: Aug 10 9:29am | Replies (39)Comment receiving replies
Thank you for the encouragement, Dee. Google is a wonderful tool, but it can be a mine field as well. I’m someone who can’t help digging in to find all the details. I need to understand! Hard when, as you say, there are serious limits to what the medical profession can say about this disease. Glad I found this site as the real life experiences of “fellow travelers” is critical to my peace of mind.
Replies to "Thank you for the encouragement, Dee. Google is a wonderful tool, but it can be a..."
Connect
Aah, these women have given you fabulous advice.
Remember - Bronchiectasis is a rare condition - I never heard of it before my diagnosis. MAC is even more rare, and cavitary MAC - well, hardly a "blip" on the statistical radar. My first pulmonologist, with 30 years of experience, said he typically sees about one MAC case a year in a metro-wide clinical practice.
Our Connect community is a safe place to ask questions because we are living this journey along with you. And better still, we are a moderated group, meaning any unsafe suggestions are flagged or removed. And everyone is kind and respectful of others.
Since you are new to this disease, please be sure to ask for an explanation of any unfamiliar term. And poke us if we lapse into jargon!
To quote my ID doc, "MAC and Bronchiectasis are conditions you learn to live with. Few people die from it."
Yes, we take it seriously, do our preventive care, take meds if we must, and figure out how to keep going.
Sue