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Life Expectancy with cavitary MAC

MAC & Bronchiectasis | Last Active: Aug 10 9:29am | Replies (39)

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@nana43

Hi!
Please stop reading the Internet… for now. Yes, it is a serious chronic illness but many people live decades with it. Keep in mind that clinicians struggle with this disease because there is very little research or definitive result data for them. I have Bronchiectasis, MAC, and most probably chronic hypersensitivity pneumonitis.
I’m 59 years old and have been on the Big 3 treatment for 6 months. Side effects are not that bad for me and tolerable. I actually feel better on meds than I did before diagnosis.
I freaked out initially- WE ALL DO!! But put your mind at ease and know there is a ton of people here that are Living this disease and our here to support you!!
Blessings, Dee

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Replies to "Hi! Please stop reading the Internet… for now. Yes, it is a serious chronic illness but..."

Thank you for the encouragement, Dee. Google is a wonderful tool, but it can be a mine field as well. I’m someone who can’t help digging in to find all the details. I need to understand! Hard when, as you say, there are serious limits to what the medical profession can say about this disease. Glad I found this site as the real life experiences of “fellow travelers” is critical to my peace of mind.