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Do you have increased coughing at night?

MAC & Bronchiectasis | Last Active: Jul 4, 2023 | Replies (74)

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@alleycatkate

@caontm Hello. I want to respond to your question. I do not cough much during the day but I have sometimes relentless coughing at night. It has been going on like this for about a year now. It has become much worse recently. I use a nettie pot that helps a lot before bedtime and also nebulizer 6% saline. There also seems to be an increase in phlegm in my throat. Anyway....I went back to my pulmo and he sent me for a catscan but then cancelled my apt last minute but I went to pick up a copy of report from the radiologist and it seems that there are no new concerns. My GP says my lungs sound good. This finally lead me to an Ear Nose and Throat Dr. He thinks it is acid reflux, a situation that I thought I had under control. He suggested it is silent reflux and that I start a 30 day trial of a Proton pump inhibitor. It is about day 5 and it actually seems to be improving. I went to Mayo when originally diagnosed with MAC and Bronchiectasis and the Dr there told me that I needed to get acid reflux under control. Said fluid could aspirate into the lung. Now I also understand that Reflux can cause a dry hacking cough. Do you think this might be the case with you? So far it is much better in just 5 days with the PPI. Just something you might want to consider. The ENT Doc stuck a tube down my nose and said that my sinuses were not impacted or overly filled with fluid. I am hoping it is just this simple.
Good luck in working though this. The coughing can be just exasperating.
Best,
Kate

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Replies to "@caontm Hello. I want to respond to your question. I do not cough much during the..."

Thank you Kate. Glad to hear you are improving with PPI. I also suspect I have the GERD reflux. I now use an adjustable bed and stay 30 degree up during night. It seems to have helped a bit. According to the Facebook MTM group “Lung Matters”, we are not supposed to use PPI. You can check that group out to learn more. Best wishes! -Cao

@alleycatkate I want to share with you a few things from my journey with laryngoesophageal reflux. I was prescribed high dose PPI's when I was first diagnosed with reflux and MAC because of a chronic dry, especially early morning, cough, with lots of post nasal drip and throat clearing. The PPI's eventually helped a little with the cough, but getting a mechanical bed to achieve a 30 degree angle and going to bed with an empty stomach made the most difference. Then, after months, it was very difficult to wean off the PPI's! It took months. There can be a rebound increase in acid production, and it’s the only time I my life I’ve ever had heartburn!
In addition, everyone should know that the PPI's and things like Pepcid don’t decrease the volume or frequency of the reflux. They just reduce the level of acidity. There are other chemicals in the reflux that still harm lung tissue when they cross over into the wrong space. In fact, lowering the acidity is thought by some to actually increase the reflux activity, because the acid is a signal to the valve to close.
I’m sure there is individual variation, but it’s not a simple situation.