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Mesenteric Panniculitis and Sclerosing Mesenteritis: Let's connect
Digestive Health | Last Active: Apr 4 7:40am | Replies (1533)Comment receiving replies
Unfortunately most doctors do not have experience with MP & from my understanding only 2 specialists in US at Minn Mayo who are not accepting new patients. I have a team of dr's on my case - grateful ... but I do not want to take unnecessary meds to be a test subject at this point. Between the uncertainty, pain and stress it can be overwhelming.
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I tried to contact a Dr at Mayo in Jacksonville and you had to be on a 6 month waiting list! They couldn’t even add my name at the time. I had just been diagnosed. Told me to call back in a couple of months to add my name! Really....