← Return to Neuroendocrine tumor in small bowel with lymph nodes involved

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Hello @queensmom,

I feel for the concerns you've expressed. I might add that many of us have these same fears. Every ache or pain can remind us of our cancer history and take us to a place of worry.

I've had three surgeries in the duodenal bulb for small NETs lesions. I'm always surprised when it happens, but I have surgery, and then all is well for a while. Like you, I have never been a candidate for chemotherapy, I just have the surgeries and have follow-ups as the doctor recommends. Right now, I'm having upper endoscopies every other year and an MRI on the years in between the endoscopies.

Please do your best to relax as much as possible. Find something to do that can take your mind off of your worries. If it would help you, try to get a second opinion, so you can feel more comfortable with your current doctor's recommendation.

What type of follow-ups is your doctor recommending? Can you get a second opinion to help assure you that you are getting the right treatment?

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Replies to "Hello @queensmom, I feel for the concerns you've expressed. I might add that many of us..."

Thank you so much for your kind words. That means a lot to me. Yes, i already have a second opinion at Dana Faber, which i have an appointment next week. My previous doctor recommended screening MRI every year.