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Hey there @rwinney !! Sorry I have been so distant for a little while now ... so much going on in life, as you know. I actually did something for me and took this semester off from school because I realized I had too much on my plate "physically" and needed to put my health as a priority. Besides, my academic focus was becoming scattered and my body was screaming "REST." I went through the SCS trial (Boston Scientific) towards the end of October, and the results were incredible! I had 85% relief all across the board for all of my symptoms - nausea, pain and allodynia. I felt like a whole new person and I actually cried. I couldn't believe it was actually possible to feel so good again! I had 4 days of amazing relief, with only one minor complication that was quickly remedied, but otherwise they deemed me a highly prime candidate for the permanent implant. I'm going into surgery for this on 12/21 (next Wednesday) and I'm counting down every second! The last few months all of my symptoms have escalated and I've been sick quite a lot, but my joy continues because there is so much hope ahead! 🙂 Thank you so much for thinking of me and for all of the positive thoughts sent my way - I've felt and absorbed each and every one of them! Thank you!! I hope you're doing good also???
Replies to "Hey there @rwinney !! Sorry I have been so distant for a little while now ......"
Girl, I knew you had too much on your plate back when we first met. Thank goodness you allowed yourself grace, listened to your body, and took the semester off. Thay was a big step! Understandably, not an easy decision but your well-being has to come first.
Incredible news that the SCS trial gave you relief! First, I was happy to see you replied back but then went on to read you had success and are feeling relief. You made my day.
I'm sorry you've been sick and wish you so much luck on the 21st. I, and other Connect members look forward to hearing how you progress forward with the permanent implant. Please take care and keep your chin up. Even us positive folks hit the bottom sometimes. Keep on keeping on. Good luck. You got this!!
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I’ve gotten a lot of relief from my Boston Scientific, too!! I’m about 90-95% better! It takes time for everything to fall into place with the implant. My 9 months ended yesterday for it to fuse into my spine.
The permanent implant was not the immediate relief I felt from the temporary implant. Not sure why. Follow their directions. Give it time to settle into your body. In March I was struggling to walk. Today , periodically I use my cane. I’m doing water aerobics three times a week. My next goal it to get the weight off that I have gained since my CRPS started three years ago.
Wishing you the best! Remember, give it time!!