My goodness, @callie28 I’m so sorry to hear your husband is still experiencing all of this bone pain. I’m wondering if it’s not so much related to the actual transplant, since this was auto and using his own cells but more-so to the chemo?
I remember having bone pain after my chemo treatments for AML. I had to drink tons of water ( over 64 oz daily) as the toxins and dead cells needed to be flushed from my body. If I didn’t, walking was difficult because of the join pain. But that only lasted a few days. When I’d walk and drink plenty of fluids that all disappeared.
After each week of chemo, I was given Nulasta to regenerate the WBC faster. It worked but the bone pain associated with that was nasty. The anti-histamine in Claritin worked better than morphine for that. But I see your husband has already been down that road without much help.
Low hemoglobin can also have joints aching. Are his numbers continuing to climb? Is your husband able to drink a significant amount of water daily?
PA’s and NP’s are guided by the direction of the transplant doctor so they must be communicating with her about this. They can’t usually make a call on treatments or diagnosis without the transplant doctor giving direction. What are the theories?
I surely hope he finds some relief soon! Is everything else with the transplant going ok for him? How are you holding up?