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Small Cell Lung Cancer with Bone Metastases: What next?

Lung Cancer | Last Active: Jul 14 2:50pm | Replies (15)

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@jhp

Thank you @mustangdee64 for your advice. Thank you for your thoughts and prayers, and I will keep you in mine as well. Would you say the social worker is more for the medicaid insurance side? I think the insurance is actually fine, but I'd like to know their treatment plan or lack thereof.

I'll probably give the patient relations a call. The doctors don't visit everyday, so I can't even take a day off in hopes of running into one of them. They told us three days in a row for him to not eat and be ready for the orthopedic surgery only to inform him in the late afternoon each day nope, not today. And now they have informed us after convening, they think it's fine to let it be for now since it's not bothering him. It might heal on its own. They'll radiate another part first later this week and then even later the part they were going to do surgery on originally. The fact that that particular bone issue is not as serious as it first seemed is good news, but the waiting...the admitting hospital spent five days before deciding he needed this specialist they didn't have, it took two to transfer him, and now it's been four days since he has arrived at this hospital. Two weeks without any treatment, and still no word about doing any lung biospy, just a pending bone biopsy.

My dad tells me that these doctors probably want to stabilize him just enough so he can go home and come back to get treatments without taking up a hospital bed. I hope the patient advocate will be able to help answer these questions.

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Replies to "Thank you @mustangdee64 for your advice. Thank you for your thoughts and prayers, and I will..."

This is frustrating to read, I can’t imagine how frustrating it must be for you and your father. My non-medical opinion; if the orthos are saying he doesn’t need surgery, then he needs a qualified oncologist, now. His cancer is advanced, and the oncologist should do a biopsy to determine the type of cancer. Treatments for lung cancer have come a long way in recent years, without knowing for sure what’s driving the cancer, it can’t be properly treated. In your original post, you mentioned lesions throughout his body. Radiating one or two areas won’t stop the growth in other areas. He likely needs a system wide approach; being immunotherapy or chemotherapy.
Talking with the patient advocate is a good start. Unfortunately you and your father have been put in this position, just my opinion, but it seems like more is needed.
Best of luck to you, keep us posted. Lisa