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Limited Scleroderma or CREST Syndrome: What helps?
Autoimmune Diseases | Last Active: Jul 25 9:13am | Replies (80)Comment receiving replies
@babydemonfangs, welcome. I can imagine you're frightened. Getting a new diagnosis, especially in your 20s is scary. I moved your post to this existing discussion:
– Limited Scleroderma or CREST Syndrome: What helps? https://connect.mayoclinic.org/discussion/crest-syndrome/
I did this so you can read previous posts and connect easily with fellow members like @shasmith @mshutch @moselurl @paulinechavez1 @marye2 @veegee @dxcrestsyndrome2020 who have been where you are today - searching for trusted information, learn as much as possible and learn to live with the diagnosis.
As we wait for others to chime in, I think you might like seeing this video with Dr. Leroy Griffing, Mayo Clinic expert, teaching about scleroderma. https://connect.mayoclinic.org/event/video-qa-about-scleroderma/
What treatment is being suggested for you?
Replies to "@babydemonfangs, welcome. I can imagine you're frightened. Getting a new diagnosis, especially in your 20s is..."
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I was diagnosed with Scleraderma at the same time as MCTD in 1996. However, after the initial few years, the tight, puffy fingers and much of the Raynauds ended. I was on Methotrexate from about 1998 - 2014, but a fairly low dose. This video was immensely reassuring, and seems to reflect what is happening for me. Lung nodules did appear last year, but not at all sure that Scleraderma was causal. For reflux and swallowing issues, hot tea, small meals and the information on webmd seems to help. I am also on Pantoprozole. https://www.webmd.com/heartburn-gerd/triggers