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Small cell carcinoma of the bladder (SCCB): anyone else?

Cancer | Last Active: Feb 26 4:12pm | Replies (51)
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@nlc512

Hi!

My mom was diagnosed with Small Cell Carcinoma invasive high grade neuroendocrine carcinoma in her bladder on 10/24/22. On 11/07/22 the tumor was removed from her bladder. She met with a team of Oncology Doctors at Chapel Hill (North Carolina) who want to treat with Chemotherapy and then removal of her bladder. She would like to keep her bladder and is looking for any treatment or trials that would allow that.

She is a 70 years old female in good health and no outstanding medical issues. Non smoker and am very active i.e. walking, exercise class, biking and dancing.

I have a few questions:
1) Has anyone been diagnosed with Small Cell Carcinoma in the bladder and if so, did you get your bladder removed? If so, I'd love to hear your experience with bladder removal so I can relay that back to my mom.

2) Does anyone know of any clinical trials or other treatments for Small Cell Carcinoma?

Thanks so much! I appreciate all of your help.

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Replies to "Hi! My mom was diagnosed with Small Cell Carcinoma invasive high grade neuroendocrine carcinoma in her..."
Colleen Young, Connect Director | @colleenyoung | Dec 13, 2022

Welcome, @nlc512. I moved your message to this existing discussion:
- Small cell carcinoma of the bladder (SCCB): anyone else? https://connect.mayoclinic.org/discussion/small-cell-carcinoma-bladder-sccb/

I did this so you can read previous posts and connect easily with others who have experience with small cell carcinoma of the bladder, like @nvmoen @tattrigoo @samasama @jimmy2248 @sandielegal @m1985 @serenalux and @predictable. You can read more of their posts in this related discussion:
– Bladder Cancer/Small cell bladder cancer https://connect.mayoclinic.org/discussion/small-cell-bladder-cancer/

You're asking great questions.
@sue225 and @sepdvm both wrote fantastic posts about their husbands' experiences with bladder replacement options in these 2 discussions:
- My husband's radical cystectomy experience https://connect.mayoclinic.org/discussion/my-husbands-radical-cystectomy-experience/
- My husband's experience with neobladder surgery for bladder cancer https://connect.mayoclinic.org/discussion/bladder-cancer-and-neobladder-surgery/

I'm forever indebted to these 2 members for sharing their experiences to share with you.

To help navigate clinical studies available, you can call Mayo Clinic with your cancer-related clinical studies questions
- Phone: 855-776-0015 (toll-free)
- Contact form https://www.mayo.edu/research/forms/cancer-clinical-trials

NLC, what treatment options are being suggested for your mom?

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