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DiscussionSevere Radiation burns from adverse reaction to mask from treatment
Head & Neck Cancer | Last Active: Dec 26, 2022 | Replies (16)Comment receiving replies
Replies to "I'm so very sorry that you and your boyfriend are going through this. It seems as..."
I am so very sorry this is happening! Unfortunately, the more I research and the more people I talk with, I’m finding this to be a common theme.
I have been doing everything in my power to research/document all that is and isn’t being done, and communicating in writing with the doctors and medical professionals. I would strongly suggest that you document everything.
This might also help your situation, several people have told me they have had better experiences if they are in a place where everything is done under the same roof. I know that Cleveland clinic has a place for family to stay while a person is going through cancer treatment. Mayo also treats their patients under one roof. Maybe they could assist you with the traveling issue.
What is particularly concerning for me is not being given the time to understand or options for treatment. We were basically issued a last minute Edict by a NP not a doctor “you are going to have radiation”. No options, or no discussion, no explanation. The standard cancer protocol (surgery, radiation, chemo) seems to be a one size fits all mentality and cancer is anything but that.
I found out too late that he absolutely had other options besides radiation, but once radiation starts the damage is done. You can’t rewind the life long inescapable side effects once your DNA is damaged. That’s why they call radiation, “The gift that keeps on giving.”
If it all possible,
I would highly recommend contacting Mayo Clinic and/or Cleveland Clinic. I feel they will give you options alternatives and hopefully better communication.