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Limited Scleroderma or CREST Syndrome: What helps?

Autoimmune Diseases | Last Active: Jul 25 9:13am | Replies (80)
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@babydemonfangs

I really didn't know where else to go. I'm 25 and was just told I have Scleroderma/ CREST syndrome. I've been doing so much reading and research, only on medical websites, of course, but I'm so scared what this could mean for me.

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Colleen Young, Connect Director | @colleenyoung | Dec 13, 2022

@babydemonfangs, welcome. I can imagine you're frightened. Getting a new diagnosis, especially in your 20s is scary. I moved your post to this existing discussion:
– Limited Scleroderma or CREST Syndrome: What helps? https://connect.mayoclinic.org/discussion/crest-syndrome/

I did this so you can read previous posts and connect easily with fellow members like @shasmith @mshutch @moselurl @paulinechavez1 @marye2 @veegee @dxcrestsyndrome2020 who have been where you are today - searching for trusted information, learn as much as possible and learn to live with the diagnosis.

As we wait for others to chime in, I think you might like seeing this video with Dr. Leroy Griffing, Mayo Clinic expert, teaching about scleroderma. https://connect.mayoclinic.org/event/video-qa-about-scleroderma/

What treatment is being suggested for you?

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