Connect
← Return to PMR Dosages and Managing Symptoms
Discussion
PMR Dosages and Managing Symptoms
Polymyalgia Rheumatica (PMR) | Last Active: Jul 27 8:00am | Replies (468)Comment receiving replies
I too am in a fog about this PMR. I have been going through this for about 19 months. I tapered down once and was off Prednisone for about 4 days when the symptoms started to come back. My Rheumatologist said to go back to 8mg and taper down by 1/2 mg a month. When I last saw my primary doctor, she said that by going back to prednisone, I might never be able to get free of it again!! Is this true? The thought of that scares me. Anyone else have this problem?
Replies to "I too am in a fog about this PMR. I have been going through this for..."
I have had PMR for 35 years and been on and off prednisone for 25 years. 10 years ago I went on 2.5 mg of prednisone a day and just recently up that to 5 mg per day.
Connect
I think that is an oversimplyfication. I first had PMR in my mid 40s and my doc never told me what my diagnosis was, but the symptoms and treatment were the same. It lasted about 1 1/2 years and I was down to 5 mg everyother day. I lost touch with that doc and eventually stopped the pred and the PMR didn't reoccur until nearly 30 years later with a lot of other stuff too. I think your best approach would be to taper very slowly and don't push yourself and try to stay healthy otherwise. Easier said than done I know 'cause life happens. But with PMR, nothing is written in stone.