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Feeling tired! Do others with PMR feel significantly more tired?

Polymyalgia Rheumatica (PMR) | Last Active: Jun 1, 2023 | Replies (75)
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@davebaker

I have been on 4 different slow tapers since Oct 2021, each one failing at around 10mg-9mg. The afternoon/evening fatigue was awful. This regimen my rheumy has me on a split dose, higher dose in morning (right now at 9mg) and 5 mg in the evening, that has seemed to help with the fatigue and I can still sleep at night. Still nervous when I get to 5mg/5mg split but taking things one day at a time. Good luck!

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Replies to "I have been on 4 different slow tapers since Oct 2021, each one failing at around..."
John, Volunteer Mentor | @johnbishop | Dec 12, 2022

Hi Dave @davebaker, I wished I had found this taper plan my first time around with PMR. If you start to struggle again, you might want to give it a shot.

-- Dead slow and nearly stop reduction plan:
https://healthunlocked.com/pmrgcauk/posts/131189593/dead-slow-and-nearly-stop-reduction-plan

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linda7 | @linda7 | Dec 12, 2022

I'm on my fourth attempt to taper below 8 mg. My rheumatolagist believes that 1/2 mg at a time is too small a drop but I insisted. I take the whole dose in the morning. I have made it to 7mg. I deal with fatigue, especially in the afternoon and I have more pain than I did before I got this disease. At times I wake up at 3-4 AM in pain since the prednisone has worn off. I haven't had a full-blown flare this time though. When I have that I spite fevers, feel like I have PMS ( I know you male sufferers can't relate) , have pain and stiffness all over plus severe pain in one area, usually my shoulders. After a month on 7 I will see how I feel. I'm willing to accept some pain which might be withdrawal symptoms from the prednisone as long as I don't have a severe flare.

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