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← Return to Mom not responding to chemo
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Pancreatic Cancer | Last Active: Dec 12, 2022 | Replies (8)
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No palliative care yet. I don't think her oncologist is ready to give up on getting her back to NED once we deal with this current tumor. Hearing that the current chemo regimen isn't working was a huge blow. I'm hoping they change it up, move on to radiation and get this thing out of her! The good news is, she feels fine. No symptoms aside from spotty hematuria.
Replies to "No palliative care yet. I don't think her oncologist is ready to give up on getting..."
Palliative care is NOT giving up. You should discuss it with the oncologist.
@asugent, I'm not sure if you saw this related discussion:
- Chemo not working. What to do next??? Please help!!! https://connect.mayoclinic.org/discussion/what-to-do-next-please-help/
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@asugent, that is fantastic that her oncologist still has options to achieve no evidence of disease (NED).
I still recommend looking into palliative care. Unlike hospice, palliative care is not end-of-life care, nor does it mean giving up or end of treatment options. Experts in palliative care are fantastic at symptom management and caring for the whole family. You say she has no symptoms, so maybe it isn't right for your mom at this time. But to learn more, you might be interested in this related discussion:
- Palliative Care: What is it? How do I get it? https://connect.mayoclinic.org/discussion/palliative-care-1/
I can imagine hearing that the chemo wasn't working was a blow and you were seeking comfort, not suggestions. I get that now. I join you in focusing on the good news of no pain or other symptoms and that there are options. When do you meet with the team to discuss what next?