← Return to Anyone else had thyroid tissue regrowth after a total thyroidectomy?

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@heatherbezzz

I had a total thyroidectomy in 1997, mine grew back as well. I had biopsies of the tissue and it came back as normal thyroid tissue. The new endocrinologist didn't believe I had a total thyroidectomy and asked me to get the records from the surgery. My thinking was yeah right, from over 20 years ago, it's lucky if you find records from 10. I'm supposed to have another ultrasound as well. Mine isn't growing normally, it's more in the left side and back behind my ear area, very strange.
I hope and pray all was well with your situation.

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Replies to "I had a total thyroidectomy in 1997, mine grew back as well. I had biopsies of..."

Welcome, @heatherbezzz. Did you have another ultrasound in the meantime? Any updates on the regrowth of thyroid tissue and what steps are next?

I had a complete thyroidectomy in 2005 . Never was good at taking the replacements . I got an ultrasound after Covid pandemic. I have a whole thyroid ; it grew completely back . They pulled my records too . I thought I was the only one lizard like …

I’m having a very similar situation… I had a total thyroidectomy back in ‘99. My thyroid has grown back but not normal. It looks deformed and has grown back strangely. Unfortunately the nodules seem to be growing (per recent CT scan of my chest for another condition). I’m going for an ultrasound tomorrow. Hopefully I won’t need another surgery! 🙏