Diagnosed with esophageal cancer Most scared of the Feeding Tube
Going to Duke Medical in a few days to:
1. PET scan results to determine if it's metastasized.
2. Determine Stage and Treatment Plan
3. Feed Tube Install in Abdomen? (this scares me more than the cancer)
Any words of advice?
What are chances this large mass has spread to other places, is it common?
My #1 goal right now is to stay positive for my wife.
Thank you,
David
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Yeh, Us caregivers get used to the fine points of creating award winning smoothies !!
Similar story I am praying for the Lord to rid you of this curse Rik
Thank you for sharing your story!! Amazing!! Sounds like you’re a strong man!!
My stepfather is 78 and is in the process of fighting! He has a complete structure Which has made it impossible to swallow anything including his own saliva. He has had a peg for weeks and The formula (glucerna) Doesn’t seem to be agreeing with him so his intake is very little and I am at wits end. We have an appt with a new GI on Tues and he starts radiation tomorrow! 5 days radiation and 1 day chemo. He’s down so much weight I’m hoping we get answers quickly. I will look up the feed you are on and push for something else or I’m gonna have to find a safe alternative!
Thank you!! God bless… and keep fighting!! ❤️🙏🏻
Sorry to hear about your stepfather. It sounds similar to my case. I could only sip water when I was diagnosed with large cancerous tumor in my lower esophagus. I've had a feeding tube since then and do 6 feedings of ISOSOURCE plus water everyday. I've had 3 rounds of chemo and the latest PET scan showed 40% reduction, and now I can eat soft foods.
Tomorrow I go for CT Simulation and hope to get schedule for 6 weeks of radiation and chemo 5 days a week. I've lost about 15 pounds hope to start gaining it back. I hope you can find something that works for your stepfather. Best wishes and prayers.
Hi. I had my entire esophagus removed and the stomach stretched to replace it. I went from 135lb to 83 now. I eat 4or 5 small things a day and try to eat fattening food like ice cream. I drink Boost at least once a day and have lots of snacks too. Hope this helps. Stay positive!
Same here. I eat very small, frequent meals and avoid heavy items like bakery goods & breads. I concentrate on high protein foods to avoid becoming anemic again. Alot of hard boiled eggs, tuna, cheese. High protein nutritional shakes (I doctor them up to enhance flavor). If you drink choc. Boost: melt a bit of p'nut butter in the micro add to the Boost!!!! 🙂
My wife adds whey powder to the water that I can drink which adds 180 caleries. Also if you can drink Vitamin Water, it will come up to at least 360 per bottle.
My doc didn't think I was a good candidate for removing section of esophagus with the cancerous tumor. After 3 rounds of chemo, I look forward tomorrow to getting schedule for radiation and chemo for 6 weeks. I also am on only soft foods. Today its scrambled eggs and chopped ham, milkshake, salmon with masked potatoes, and cheesecake for dessert. I hope you can eat lots of high calory food to gain back some weight. I'm about 15 pounds lighter still. Best wishes and prayers for healing.
I just received my PETSCAN results from yesterday. Meeting at Duke tomorrow to get results.
Can anyone read this and tell if it's metastasized?
Thank you,
David
@ddunavin, it looks like your PET scan results didn't attach with your post. But that is likely not necessary since fellow patients on a forum like this one aren't equipped to interpret imaging results, even if some of us have medical backgrounds. That is because a PET scan is but one piece of the puzzle. Your doctor is the person equipped to interpret these results because they have the full picture including your medical history, the results of the clinical exam, and other tests you've had done.
With the new rule that you get your PET scan results in real time has been mentioned by many people to be an advantage and disadvantage, most notably that it can cause a lot of anxiety. See comments about dealing with getting test results and how to prepare for your appointment in this related discussion:
- The Patient Portal—Help or Hindrance? https://connect.mayoclinic.org/discussion/the-patient-portal-help-or-hindrance/
I love the picture of your puppy. I assume this your dog. Is he/she sticking closer to you these days?