I was diagnosed with a NET on the head of my pancreas at 42, after 6 years of worsening symptoms many visits to the GP, two ER visits a few misdiagnosis. I was shocked and terrified when I was told a CT scan showed a NET on my pancreas. I initially discussed with three surgeons that all thought it should stay in as where it was made the surgery alot more difficult, one even said it would be easier to remove if it was on the tail, I don't know if that is correct or not. I had whipple surgery after seven years of watching it and my primary NET didn't really grow but had two new growths on my liver that were removed at the same time as well. For me I had a lot of improvement in my quality of life after surgery. All previous symptoms were gone after surgery. I am now three years after surgery still feel good, waiting for a PET for a new spot on my liver. I know the surgery for the tail is very different then mine, but I did the wait watch approach and wish I would have had surgery earlier based only on how much better I feel after surgery. I am also hopeful after reading posts from others who have managed for years after a NET diagnosis.