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Newsfeed PostNewsfeed Post in blog Ehlers-Danlos Syndrome
Research Updates: EDS Clinic Published Jul 19 10:12am | By Samantha Campbell (@samanthacmaa)Comment receiving replies
This may be going down a rabbit hole but my granddaughter was born November 19th. of this year. She was born with an esophageal atresia and tracheoesophageal fistula. Genetic testing showed she was at risk for TAAD.
My son and daughter-in-law have been tested to see if they carry the same gene, which would increase her risk.
It's it possible that this is related to Ehlers Danlos? Just another reason I'm anxious to the doctors there.
Replies to "This may be going down a rabbit hole but my granddaughter was born November 19th. of..."
Hey pip2one, I am newly looking into EDS and experience some symptoms that align with it. I am 31 now but was born with a TE fistula. Did your son and daughter in law ever get any answers regarding the connection between the two for your grand daughter? I am interested to know! Thank you!
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Congratulations on the the new granddaughter! I can understand why you're concerned and wish to be seen at the EDS clinic. It may be going down a rabbit hole and unlikely that the esophageal atresia and tracheoesophageal fistula are related to EDS. But you're right to ask questions. And you're asking good questions. Keep writing them down as you prepare for an appointment.