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Newsfeed PostNewsfeed Post in blog Ehlers-Danlos Syndrome
Research Updates: EDS Clinic Published Dec 12, 2022 | By Samantha Campbell (@samanthacmaa)Comment receiving replies
This may be going down a rabbit hole but my granddaughter was born November 19th. of this year. She was born with an esophageal atresia and tracheoesophageal fistula. Genetic testing showed she was at risk for TAAD.
My son and daughter-in-law have been tested to see if they carry the same gene, which would increase her risk.
It's it possible that this is related to Ehlers Danlos? Just another reason I'm anxious to the doctors there.
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Congratulations on the the new granddaughter! I can understand why you're concerned and wish to be seen at the EDS clinic. It may be going down a rabbit hole and unlikely that the esophageal atresia and tracheoesophageal fistula are related to EDS. But you're right to ask questions. And you're asking good questions. Keep writing them down as you prepare for an appointment.