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Research Updates: EDS Clinic Published Dec 12, 2022 | By Samantha Campbell (@samanthacmaa)
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@colleenyoung

@pip2one, the clinic is busy. To find out more, please contact the Ehlers-Danlos Syndrome Clinic in Florida appointment office at 904-944-3149 8 a.m. to 5 p.m. Eastern time, Monday through Friday.

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Replies to "@pip2one, the clinic is busy. To find out more, please contact the Ehlers-Danlos Syndrome Clinic in..."
pip2one | @pip2one | Dec 11, 2022

This may be going down a rabbit hole but my granddaughter was born November 19th. of this year. She was born with an esophageal atresia and tracheoesophageal fistula. Genetic testing showed she was at risk for TAAD.
My son and daughter-in-law have been tested to see if they carry the same gene, which would increase her risk.
It's it possible that this is related to Ehlers Danlos? Just another reason I'm anxious to the doctors there.

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