Hi. I woke from back surgery in 1979 with what was them called "causalgia." Then morphed to RSD tho they actually represent type 1 and type 2 but only what caused it. Symptoms etc are identical and really, it's only an insurance code thing - if even that anymore. It doesn't matter how you got it these days so that seems a moot point.
I've lived with it in my left for for 43+ years. I've been on crutches since I was 24, which is when it occured. I'm now 67. It spread to my right foot about 12 years ago after a fall and got worse and spread in my left foot and leg after a knee replacement that the doctor didn't even consider could happen. My gastro says I don't have ISB, I have CRPS in my intestine. That practice is very aware of CRPS. Even asks a separate question about it on their intake form.

I got COVID in June 2020. It spread up to my hips, to my rib cage and to my larynx. I have had long covid and sleep with oxygen now and constant pain from my hips down esp my outer thighs which feels like a bees nest lives on my skin. My voice is much deeper and cognitively, things are bad. All things that can happen from CRPS and COVID. Together, terrible. I have the teeth problems people get but we aren't told about usually and over the years I have been shamed by dentists when I've been able to afford to go. I've been on SSDI, Medicare since 1981. I am vaccinated etc. I got COVID again in August of this year. (I barely left the house in 2020 and 2021.) Now I go to PT twice a week, psychotherapy 2ce a week with a chronic pain psychologist. I am about to start pool therapy per the long COVID clinic it took me 2.years to get into but even once I got an appt, it was an 8 month wait. The pool therapy is supposed to help with my oxygen level which is about 92 and drops into the 80s even on oxygen.

I have also started speech therapy which is used for brain food and helping find works etc that occurs with CRPS and long COVID.y whole life is doctor appts esp since I am now back.on crutches post covid.

Please get the shots. If you think the shots hurt, you sure don't want to get COVID itself. Read about cytokine and bradykine. If you have CRPS, you already have a high level. COVID increases the level in healthy people. In fact, it's a cytokine storm that causes death in ICU.

I'm about to go back on a strict antiinflammatory diet that will also involve even making my own bread so it can be flour and sugar free.

I take no addictive medication except 1mg of ativan at night. I use trazedone to help me sleep. I am allergic to all opioids except I can take tramedol on occasion tho it's causing hives now too. My doctor lets me inject myself with toridol (I'm a nurse) of the pain is so bad I'm about to end my life. I've done that once and attempted several times. The typical CRPS patient thing of "the suicide disease." 43 years is an entire lifetime. I was disabled from nursing at 24, after only 3 years. My back surgery that caused it initially was from an on the job injury. I am currently on Prednisone after another wide spread after getting COVID a second time. I'm titrating down from Prednisone but when I get to a certain point, I get bedridden. Highly recommend an adjustable bed if you can get one.
So, hang in there folks. I've been in bed mostly since getting COVID again in August. Long covid is real and when you add a CRPS spread and doubling your already brain fog...well, get the vaccine, wear a mask and stay distanced. If someone in your life says they have a cold, my doc says assume it's COVID and stay away. I am not sure I can survive getting it a third time.
My best, Betty

Do any of you have so much stinging it's like there are bees on your skin and inside, for me, my thigh. Can't get away from it. It wasn't there until the COVID cause spread. It's horrible.

A bees nest lives on my thighs.