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Merkel cell-radiation effective on chest-new 2 cm spot on liver
Neuroendocrine Tumors (NETs) | Last Active: Oct 2, 2023 | Replies (19)Comment receiving replies
@kate777, I'm sorry to hear that your worry was confirmed at Merkel cell carcinoma. Immunotherapy is often used to treat Merkel cell carcinoma that has spread to other areas of the body.
Might getting a second opinion at Mayo Clinic be an option for you? You could develop a treatment plan with Mayo experts, who can work with your local oncologist to receive treatment closer to home.
Replies to "@kate777, I'm sorry to hear that your worry was confirmed at Merkel cell carcinoma. Immunotherapy is..."
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@collenyoung, Thank you for your empathy and helpful advice. My insurance will not let me go out of state for appointments or treatment, so unless there were grants or other options that Mayo offers that is unfortunately not an option for me.
An MRI confirmed that I also have "salt and pepper" sized Merkel cell on my T-11 vertebra and right pelvis. I am relieved to hear you say that immunotherapy is often used for situations like mine, and I have my first infusion this Wednesday. I am doing my best to remain positive and hopeful. Thank you for your reply and I will keep you updated. I have to believe that this will work and that I have many years left in me!!!