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Vitamin B12 deficiency and small fiber neuropathy

Neuropathy | Last Active: Sep 10, 2023 | Replies (73)

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@xian121905

I am so glad I joined this group. I have 2 mutations and never was good at taking vitamins as I was diagnosed young. I’d take vitamins then stop then start. It wasn’t until recently in July I started feeling pricking sensations in my hands mostly, and I talked to a good friend who also has the mutation. She told me to drink under armour waters and ditch my synthetic vitamins, so I did. Up until that point I had never had my homocysteine levels check, so my dr checked that and it was good, however she did not check my levels. Fast forward to the end of September, both feet started with what I call a vibration feeling, almost as if a blood pressure cuff had just taken my blood pressure. When I first wake up I don’t notice the buzzing at all until I get moving. My mom and sis both have neuropathy but they go to sleep and wake up with it, so I’ve been stumped as to why mine is not the same. However the last few mornings I have felt it upon waking but only in my right foot. That one seems to be the worst for me. Is this all normal?

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Replies to "I am so glad I joined this group. I have 2 mutations and never was good..."

Hello and welcome @xian121905. I'm glad you found us! Yes, inconsistencies and uniqueness of neuropathy symptoms is quite normal. Neuropathy has a variety of symptoms and each person's experience may differ. Odd, isn't it?