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Neuroendocrine Tumors (NETs) | Last Active: Nov 29 1:22pm | Replies (429)Comment receiving replies
Replies to "Followup answer: My invasive surgery (I’m a relatively healthy 80 year old man) was for a..."
You mention Octreotide and ability to avoid so far. This has been recommended for me but cost prohibitive despite Medicare and supplemental insurance. Not too interested in giving myself 3 injections a day either. What made you want to avoid Octreotide?
Thanks for sharing. Where did you get your second opinion? Since 2022 are you getting any scans as follow up or did they not think that was necessary. Thanks again.
@beech18bob
I so appreciate your great narrative about your surgery and treatment for NETs. I'm also glad that you have found this forum helpful to you!
Yes, this rare form of cancer certainly creates a desire to know more about the personal experiences of others and to learn more about this type of cancer which most people have never hear of before.
I so agree with you regarding the importance of a second opinion! Glad to hear that you took that advice.
Is it OK with you, if I tag you to offer encouragement to others facing similar surgery?