← Return to Thyroid cancer with distant mets at diagnosis: Looking for support

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@roya81, I actually merged your post with this discussion that @carolinanurse started. @jay88 too was diagnosed with metastatic thyroid cancer at the time of first diagnosis.

Seeing mention of lung nodules, liver lesions, bone deposits ignite fear and worry and bracing for the worst. It's rather the double-edged sword of getting reports before one's appointment with the oncologist. It's important also balance the worry and not let it run wild.
"Lung nodules are small clumps of cells in the lungs. They're very common. Most lung nodules are scar tissue from past lung infections. Lung nodules usually don't cause symptoms. They're often found by accident on a chest X-ray or CT scan done for some other reason." https://www.mayoclinic.org/diseases-conditions/lung-cancer/expert-answers/lung-nodules/faq-20058445

Likewise, "Liver lesions are abnormal growths of liver cells that can be cancerous or noncancerous. They’re found in as many as 30 percent of people over the age of 40. The majority of liver lesions are noncancerous, or benign. Many lesions are detected during imaging tests for unrelated health conditions. Although most lesions aren’t harmful, it’s still critical to receive a proper diagnosis." https://www.healthline.com/health/liver-lesions

@roya81, it sounds like more investigating needs to be done to understand the abnormality of the bone. Thyroid hormones play an important role in bone mineral homeostasis and bone density. The bone deposit may or may not be metastasis.

I realize that it is much easier said than done, but try not to use today for tomorrow's worries. In other words, you need more information and until then focus on getting good sleep and to be prepared for your upcoming appointments. I usually find it helpful to keep paper and pen handy. When things start whirling in my mind, I write it down as a question for the oncologist. Writing it down helps me to put the worry in its place and move on to occuppying my mind with other things. I'm not always successful, but sometimes I am.

I'm glad you have found this group to share with each other.

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Replies to "@roya81, I actually merged your post with this discussion that @carolinanurse started. @jay88 too was diagnosed..."

Ah, @colleenyoung, very relieving comment. Everyday has been a rollercoaster of emotions for me, one minute I’m very positive and hopeful, the next minute, I’m sobbing loudly. My husband is very optimistic though. He doesn’t like to see me crying but sometimes I just can't help it.

I’ve now stopped looking up the mets thingy and I’m trying to concentrate on his op and recovery only. I’m sure he’ll be fine.

I tried McMillan chat yesterday but the nurse was super-slow in responding so I gave up. Do you have any suggestions for getting answers to medical questions at all? Our consultant’s secretary is awful, her phone is on voice mail all the time.

@jay88, please could I ask at what stage you are atm? Any advice would be much appreciated.

@colleenyoung, thank you again tor your kind words! xx

A little update: I saw a pulmonologist and he went over the CT scans with me. He said there are dozens of nodules in every lung field bilaterally. I am set up for a bronchoscopy for biopsy after my TT, which will be Tuesday the 20th. He strongly feels they are either a separate primary lung cancer or mets. I have begun coughing up blood as well. I will keep y’all updated. I’m just trying to get through the thyroidectomy for now. Prayers always welcome!