Gastroparesis with severe symptoms!

I'm having the same issues it is worse than anything I have ever dealt with I'm a 20 year diabetic have had health issues my hole life also a 20 year heroin and meth addict with almost 2 years sober now and Ill just say id rather deal with being a drug addict any day of the week than dealing with this. IV been told I'm mentally ill or I'm having panic attacks for the last 6 months been to the ER countless times an had more blood tests and EKGs CT's thyroid tests testosterone tests adrenal tests more tests an bullshit than I thought I could ever handle and it's just not getting any better. I'm just breaking down I have no idea what to do my PC won't do anything anymore because she has done everything she can think of an I'm at my Witt's end they said I was crazy an I want to choke a person when they tell me that buy Its starting to drive me in that direction Iv ever contemplated suicide I just can't get any relief an its just horrible someone please help me!!!!!!

@benleroy0322 When I say hang in there, it's not just blowing smoke. As a 30-yr diabetic and with 29 yrs clean and sober but with lifelong major clinical depression and very serious new diagnoses, I certainly can relate. I use distraction, music, insulin, diet, counseling, meditation and other strategies to cope, including participating in Mayo support groups. I also try to stay in today. Fortunately, my PCP referred me to specialists who have helped some and therapist has said some of my anxieties and sadness are realistic and appropriate and is helping me come to terms with the realities of my diagnoses and is helping me reach a certain level of acceptance of what I cannot change.

If all this sounds like the Serenity Prayer, it is.

Don't give up yet. You may not be able to see it right now but there IS hope! And please keep us posted! People do care about you.

Gastroparesis is a terrible thing to deal with. I am 4 years into it. I found that had to strictly follow a diet. No raw veggies or fruits for sure. I also went dairy and gluten free. I had severe constipation. I went to physical therapist who taught me massage to help move my food through. Also a mixture to make and take at night. I still had a lot of bad days.
Then I found a surgeon who treats Gastroparesis. He preformed a Pyloroplasty on me on November 1. I am better than I have been in 4 years.
I did lose 32 pounds right away and have only gained back a few pounds. I am trying to eat more because I am far too thin.

I had a Pyloroplasty surgery done.
My pain is almost non-existent.
I am still eating soft foods and liquids.

Brenda:
when do you plan on "advancing" your diet a little - to see if you can eat more normally? The pyloroplasty is a procedure I have been considering - I am not quite ready for it yet - but if things get any worse I will definitely consider it. I am anxious to hear if you can eat normally after it (or close to normal).

I had a telehealth visit with the surgeon yesterday. He said I should continue to improve over the next 2 months.
Then he had me make an appointment with a Gastroenterologist to guide me through the adding of new foods. I have that appointment in February.
I am just so happy to not be in pain all the time with cramping. The surgery was well worth it!
I will update as I begin to add more foods.
He said it takes about 3 months to get the full recovery from the pyloric valve opening. He said it hasn’t had time to fully open yet.

thank you for the update, Brenda. I am so pleased you are doing better. No nausea ?? you can eat whenever you want I.e. you can eat at dinner time and then lay down and not feel nauseous? if you recall - right now I stop eating solids at 2 p.m - full 8 hours before I go to sleep. I still don't feel "comfortable" 8 hours later - but I am able to fall asleep laying on my stomach. Semi-reclined, on either side or on my back I get aching and nausea - laying on right side is THE WORST... I wake up during the night and its only after about 2 a.m. that I can lay in any position - so 12 hours post last meal - and its a small soft meal - around 1 cup of food.... I do have liquids and purees (usually stewed apples or pears pureed) later than 2 a.m. - up until about 6 p.m. - but very small amounts .... Anxious to hear if you get back to 'normal" Prior to your procedure - what were you eating??

I am still eating as I was beforehand. Until the 3 months are over and I see the Gastroenterologist, I will stay on soft foods.
I eat canned baby carrots, potatoes and French style green beans (no bean), sweet potatoes, beets, tuna, rainbow trout, any flakey fish grilled;
Nothing fried. I eat a lot of creamy peanut butter and Nutella, canned apples (no sins)
White bread. Cooked chicken - no fried! I am not having pain or nausea.
After I see what happens next, I will post again!
I hope you feel better.
This cleaning out and opening my Pyloric valve has definitely helped. He said it will continue to open more over the next 2 months.

well that diet is not too bad .. i was under the impression that in order to undergo that procedure you have to be pretty much down to only being able to tolerate liquids or something like that! It is a lot more than i can eat right now!! So the only thing that changed pre and post the procedure is no pain and nausea but you are eating the same foods essentially? you can eat, for example, chicken or fish for dinner and then go to sleep a few hours later????? and you could to this PRIOR to the procedure??? do you sleep on a wedge pillow or you can sleep in any position at all??

I don’t sleep on a wedge pillow.
The foods I have listed I have eaten the last 4 years other than the first 3 weeks after surgery when I was on all liquids.
I should be able to add more foods during the next 2 months when the pyloric valve opens more and I am all healed.
The biggest change is that I am not in bed cramping all day as I was almost every day prior to the surgery.