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Anyone taken Evenity (romosozumab) for Osteoporosis?
Osteoporosis & Bone Health | Last Active: 4 days ago | Replies (1363)Comment receiving replies
I am considering taking Evenity. I am searching through all of your posts to find out, how Evenity is tolerated by you, if you had serious side effects, and yes, what to do about dental care while you are getting this drug or after.
I had to take Alendronate for seven years until 2018. I had one infusion of Reclast in 2013, after my bones were getting really bad from breast cancer treatment. I have had multiple discussions with oral surgeons because I have had dental problems while on the drugs and after I stopped the drugs. I did not know before taking all these drugs, that taking them would impact me for years to come in my dental care.
In 2018 and 2022 I was told by different maxofacial surgeons not to extract the teeth that were ailing me. I was told, I was at huge risk for osteonecrosis. All of this mostly because of the IV Reclast infusion and to a lesser extent because of Alendronate. It cost me a fortune (multiple root canals etc.) to save the teeth which really were not savable. One tooth was cut in half to keep it in. I wonder now, if Evenity could bring me back into this same situation. My teeth are in horrible shape, as I really could not fix them right. Does anyone know more about dental extraction and Evenity?
There is plenty of literature from maxofacial surgeons and American Dental Association on the prevention of osteonecrosis during dental procedures in patients who have taken bisphosphonates. Perhaps some of these guidelines also apply to Evenity, I do not know. When infection of gums or near bone I always immediately take antibiotics.
Replies to "I am considering taking Evenity. I am searching through all of your posts to find out,..."
I am having the same questions and concerns about Evenity treatment. I am scheduled to start my first injection on 1/5/23. But right now I've been fighting the flu (I think) for the past week, still sick, better but not 100%. I am even more leery about starting now, I want to be at 100% (if possible). I also have gum issues, I been going to Dentist every 6 months for my cleanings, they have to do a deep cleaning due to my gums. Years ago I had to build up bone in my jaw to have a post put in (that was right after Chemo treatments).So now I'm concerned about that. I also have carotid artery stenosis. I am going to contact my Rheumologist with these concerns. Weigh the pros and cons.. ugh
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Good evening @kay44. And, of course, welcome to Connect. As I hope you discover quickly, this forum is all about sharing. And that is the way that we all learn about our conditions and that means me. How I wish I had asked your questions earlier before I followed the wrong person to make my decisions.
My daughter worked for periodontists for years and I never thought to ask them. When I did, their feedback about my situation was priceless. I think I am finally on the right path. What did help me was talking directly to the medical professionals at the manufacturer's headquarters. The number for Amgen which makes Evenity and Prolia is 800 772-6436....option 2.
Evenity is the newest bone-building osteoporosis medication so its history is still evolving. It also has the ability to prevent reabsorption to some degree.
I am so sorry you have had such a rough road so far. I also chose a bone-building route with Tymlos. My problem was an anxious endocrinologist who started me on bisphosphonates before my Dexa scores indicated that there was a sense of urgency.
Please let me know if you received the appropriate information for your decision.
May you be free of suffering and the causes of suffering.
Chris