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Diagnosed with sarcoma? Let's share
Sarcoma | Last Active: 1 day ago | Replies (865)Comment receiving replies
have been diagnosed with liposarcoma tumors in the abdomen- they are aggressive. The larger ones are 13 and 8 centimeters & growing at 1 cm. per month.
Have been told that surgery is the only option & will lose the left kidney, spleen, and some intestines and likely end up with a colostomy bag. Have no pain, still eating normally. Pressure is growing in the abdomen!
Anyone have similar symptoms or has had surgery???
Replies to "have been diagnosed with liposarcoma tumors in the abdomen- they are aggressive. The larger ones are..."
Yes. Could not remove the large tumor attached to hip. 15 Radiations and 4 monthly chemos.
Resected bowel in many places. Ostomy bag takes time getting used to.
Back to yoga and a bit of swimming.
Radiation 4 times on growing tumors in lungs.
Now more monthly chemo.
The terminal part is scarey.
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My Pleomorphic Liposarcoma presented itself just off of my spine, between the shoulder blades. It grew very quickly and unfortunately it took five weeks to get the diagnoses. I was in Florida when diagnosed and I wasn’t comfortable with the plan they had for it’s removal. I contacted my primary in Mankato, Mn. and I was quickly referred me to Rochester Mayo. Within one day they had a plan and surgery was performed to remove the tumor. Following the surgery it took ten weeks to healing the site before radiation and chemo could be performed. I was fortunate that it presented itself where it did. It was visible early and only minimally attached itself to the muscles in my back. It will be a journey , but believe me, you are in the right place! Mayo is the absolute best in my mind. I wish you good fortune in your journey. You can trust this institution!