All over neuropathy

Posted by marianmabryharris @marianmabryharris, Nov 30, 2022

Last 3 years I have had mild neuropathy on the tips of my toes. My life changed over night when I woke up and the pain in my feet 7 unbearable. Within 10 days, the numbers moved all the way up my body. Does anyone have all over body numbness?

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Not all over, but has become polyneuropathy affecting bladder (no muscle control, urgency), handwriting and balance. Want to explore Sanexas treatment but can't find local office in Richmond area.

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Hi, yes I do, I have it from head to toe including auditory neuropathy too. Just this weekend I discovered a new area where the neuropathy has progressed quite drastically. It's such an odd sensation to experience. I can see it has definitely made me more cautious what I do so I don't cut myself or injure myself and cause infections. My best to you

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@seanmacbeth

Not all over, but has become polyneuropathy affecting bladder (no muscle control, urgency), handwriting and balance. Want to explore Sanexas treatment but can't find local office in Richmond area.

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I will share with you the handwriting, in past two years, I can hardly understand my own handwriting. I decided to go back to printing hoping to be able to understand it. Seems to be easier. I have polyneuropathy as well and experience similar effects.

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I take no Rx drugs, just using a combiation of herbal, naturopathic formulas and it seems to be holding steady for now but I worry about worsening in the future. Also using reflexology, which seems to make a big difference. I'd like to hear what you are taking; let's share notes. Sean

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Yes, I do have sometimes all over body numbness, from my feet up to my lips, but only sometimes.
I have no idea what triggers it. Can be food, drink, stress, no clue. Probably stress. And can only feel it when lying in bed, awake in the middle of the night.
Or sometimes I have chills, so bad, it's hard to fall asleep.
Every day is different.

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Yes my fingers and lips but I have had PN for about 15 years.I only take amitriptyline but get good relief with CBD ( marujana )drops orally and massage my feet with CBD cream and wear socks. At night .I am able to buy it at the government store in town.I live in Canada wherewithal is legal

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I have numbness, pins/needles, sharp pain, electric shocks, etc. on my left side head to toe and everything central except tongue and throat. It jumps around like whack-a-mole so every day is a new adventure. A random dose of steroids showed it could completely calm everything down for a few days. I take a metric ton of supplements now to help control inflammation but they are slowly getting less effective as I assume my condition is worsening. Adding a few more maybe-they-will-do-something ones and the symptoms may have crossed to my right side - hard to be sure with other issues.

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@chestnut

Yes my fingers and lips but I have had PN for about 15 years.I only take amitriptyline but get good relief with CBD ( marujana )drops orally and massage my feet with CBD cream and wear socks. At night .I am able to buy it at the government store in town.I live in Canada wherewithal is legal

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Cbd or cbd/thc? My dr. Says I need cbd/thc, but it's illegal to drive with THC. Just curious if cbd only helps with pain.
Thank you 😊

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Does anyone else get up in the morning feeling so weak I can't set up?

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@sharka

Cbd or cbd/thc? My dr. Says I need cbd/thc, but it's illegal to drive with THC. Just curious if cbd only helps with pain.
Thank you 😊

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I use CBD internally and topically and THC d8 internally for chronic pain. CBD, for me, works wonders topically especially when combined with a 2% or less mix of essential oils. THC d8 helps takes the edge off when my pain is at its worst. Even though it is legal federally and in most states, you may find THC in any form may test positive for weeks. Oral ingestion of CBD seems to be calming and helps cope with pain—but not enough for my neuropathy.

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