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DiscussionLiving with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Replies to "Welcome @daimudan, We are happy you've found us!! There are a lot of different discussions in..."
Sure! (short version) Following my initial J&J vaccine, I started having numb spots throughout my body. Fingertips, toes, belly, left leg. Eventually my left leg went dead. It felt like a prosthetic; like it wasn't mine. After 8 months of tests, tuling things out, and a nerve induction, I was told it was axonal polyneuropathy.
Numbness in the toes, bone crushing pain in the feet, typically after (even a short time) periods of rest or just getting up. Systemic body aches and stiffness. It was also found through labs that I had pretty bad B6 toxicity, so that hasn't been in the equation for over a year. Difficulty dealing with things that were seemingly simple before - a flight of stairs. A simple curb. Fell several times, three times ending with fractures.
PT did little to nothing for me (in Phx). Pregabaline and Tramadol helped take the edge off.
I was lucky enough, here in Tucson, to find a DPT who took the time to study my issues, talk to neurologist pals of his and work in my proprioception. We also do strength work. Pain is half of what it was a year ago. I'm always eager to learn more.