← Return to Pacemaker recipients: Looking for support from others

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@becky1024

Don’t know if this will help you but I was born with a defective heart involving the SA node (heart’s natural pacemaker) and the AV node, that commands the Ventricles to squeeze and pump the blood. I have what’s known as WPW, Wolff, Parkinson, White Syndrome. It causes my heart to go into Pulseless Ventricular Tachycardia (beats to fast). Bradycardia (beats to slowly, A-fib (chambers are out of sync) Spontaneous Blackout, and triggered 3 heart attacks.

I told you all that because my Electrophysiologist, a specialist cardiologist that treats all electrical aspects of the heart. In order to help me, he had to implant a $25,000 special loop heart recorder to monitor my heart 24/7. He made an cut by my left breast, inserted the device and positioned it were it needed to be by my Left Atrial Chamber, the company rep was right there and activated it. Like you, I was apprehensive about having it in my body for 5 years before replacement. Yes, it felt strange having something in my chest and can touch it thru my skin. Naturally I was fatigued for several weeks, the healing took awhile but went well. It was placed in me August 2021 and I can’t tell it’s there anymore unless I touch it. It shouldn’t be much different from a pacemaker other that the wires. I’ve had two major electrical events on November 25th and 28th, they were recorded and sent to my hospital’s heart lab because I had a nasty fall and knocked unconscious on the 25th. I’m glad my device worked when it should have and I was contacted by the hospital. So don’t judge your aches and pains for at least 6 months. Not related to the device, I was told if the pain feels dull, it’s most likely a chronic condition. If the pain feels sharp, have it checked. Sounds like good advice to me. Hope things go well for you. @becky1024

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Replies to "Don’t know if this will help you but I was born with a defective heart involving..."

Thank you so much. This sure does help