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Anyone had Metastatic Squamous Cell Carcinoma?

Head & Neck Cancer | Last Active: Nov 10, 2023 | Replies (53)

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@chanderson

In April & May of 2022 I thought I had a swollen Lymph node so I went to my doctor and started a journey of discovery to figure out what it was - The object in my neck was a palpable lateral right neck mass measuring approximately 3 cm. After fine needle aspiration by pathologist: The mass was Positive for metastatic squamous cell carcinoma. I feel incredibly lucky that this was caught early. Starting in June I had 33 radiation treatments along with Chemo. My last treatment was August 12th & I’ve been in recovery since trying to regain weight & muscle while dealing with saliva side effects and rebuilding my immune system. The accumulative Treatment is tough and the mental and physical impacts to weight loss / lack of ability to swallow for weeks was much harder than anticipated.

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Replies to "In April & May of 2022 I thought I had a swollen Lymph node so I..."

It gets better. You're strong. Keep up the good work!

You have had a tough battle and it isn't over yet, but from here each day may bring a little more relief. When you have a better day, hang onto that feeling and know that you will have many more as the weeks go by. Keep trying new things to help gain weight, as your taste buds will keep changing. I mostly lived on smoothies made with whatever fresh fruit tasted right, but added ricotta or cottage cheese for protein. The tang of yogurt just wasn't pleasant. It sounds like you didn't have a feeding tube but that is always a temporary option. I survived without one also but getting enough calories in is tough. Stay active and look into a mild exercise program like beginning yoga. I kept walking daily even when I needed a cane for balance. A year from now you will be doing so much better, adapting to the new normal. For a bittersweet smile, google "cancer and mountain lion" to see a very creative little analogy for cancer treatment that someone wrote.... I smile and shed a tear at when I read it. Be strong and good luck.

@chanderson, I’d like to add my welcome along with @jimthomasintl and @sepdvm.

What helps you with regaining weight & nuscle? Any tips to share? Did you work with a speech therapist to rehab the ability to swallow again?