Hi @johnbishop, I got very sick 2 years ago, unable to get out of bed because of weakness and severe pain. My CRP and Sed Rate levels were through the roof. Tests for the usual suspects, RA, Lupus, Lyme etc were all negative. Over the past 2 years I've taken prednisone/Methotrexate, prednisone/Leflunomide, and prednisone/Humira. I got down to 4mgs prednisone with the Humira and then had a "flare up" 2 months ago. I'm now on 5mgs prednisone/40mg Humira, but am quite unwell still. I really don't want to increase the prednisone again so I'm hanging on until my next Rheumatology appt in February.

My diagnosis is PMR. My father was diagnosed 10 years and used prednisone throughout, but just recently got down to 1mg. My symptoms have been much more intense than his ever were. I never knew PMR often ran in families. It has ruined my life.

I still contemplate seeing Dr. Jemsek in DC. A girlfriend had similar symptoms and was treated by Dr. Jemsek in DC. He thought she had a very long term case of Lyme and treated her until she went into complete remission. She never once tested positive for Lyme and has been well for 12 years. If you know anyone else who sought help from him, please let me know if it was successful.