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@jenniferhunter

@dgcosentino831
Doug,
I had another thought of what may help you right now while you are waiting for an exam. I was working with a physical therapist when my spine problem started becoming evident, and I continued this therapy and also did myofascial release. She was trained in the John Barnes methods, and did a lot of this on my neck because of thoracic outlet syndrome. She was also using a Dolphin Neurostim unit on the cervical nerve roots. There is a setting that interrupts the neuro transmitter pain signals, and I found that it reduced my pain for about a week at a time. That was during the time when I was having trouble finding a surgeon to help me, and my symptoms were getting worse.

Myofascial release helped a lot to loosen my neck, so it was easier for the surgeon to retract during surgery. During my consult, his comment about my neck skin was "loosey goosey" when I asked what I could do to make his job easier. This set me up for a successful surgical procedure, and after surgery and healing, MFR helped loosen the scar tissue which reduces pain. If you need to find a PT trained in these methods, there is a search at http://mfrtherapists.com/

Here is our MFR discussion: (the first pages have lots of links to information)

Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Dolphin Neuro Stim https://www.dolphinmps.com/

This helped me buy some time before I could have decompression surgery. It doesn't fix anything, but may help you feel better at least temporarily.

Jennifer

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Replies to "@dgcosentino831 Doug, I had another thought of what may help you right now while you are..."

Hi Jennifer
Wow, you are a wealth of knowledge!!
My local PCP was not helpful with a specific referral. I reached out to my DIL who is an anesthesiologist at Ochsner in New Orleans. She suggested Dr Paul Celestre who is an ortho spine surgeon. I set up an appt with a few mouse clicks (unlike the numerous hoops Mayo puts one through), although to be fair I was already in their system. My appt is on February 3rd. I would have preferred a neurologist workup, but ultimately the same studies will be performed.
Again, thanks for your insight.
Doug