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Facial Swelling - no diagnosis

Autoimmune Diseases | Last Active: Apr 20, 2023 | Replies (158)

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@jroge

My name is Josh Rogers and I’ve had an issue where my face is constantly swollen and puffy. It started in 2017 and has never gone away. I’ve been to many many doctors and every test they’ve done has come back normal and I get pushed away because they can’t figure anything out. To name a few I’ve been tested for allergies, hereditary angiodema, had sinus polyp surgery, been to a naturopathic doctor, and many more that have all said they don’t see anything abnormal and can’t help me. The swelling is typically worst in the morning but never completely goes away throughout the day. I’ve taken prednisone and that helps manage the swelling to an extent but never returns my face to normal and as soon as I finish my prednisone stint over a month or two the swelling comes back full force. I’m looking for help or answers as this has been very distracting, annoying, and overall kills my self esteem. I have attached two photos of what I have looked like for the last 5 years swollen and two more from before the swelling started. I appreciate anyone taking the time to help thanks!

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Replies to "My name is Josh Rogers and I’ve had an issue where my face is constantly swollen..."

@jroge, I can imagine that this unexplained facial swellng and not finding answers kills the self esteem.

I moved your post to this existing dicussion:
- Facial Swelling - no diagnosis: https://connect.mayoclinic.org/discussion/facial-swelling-no-diagnosis-after-2-years/?commentsorder=newest

I did this so you can read past posts and connect easily with others like @zebra2022 @melanchete @lucamckinnon @ginabee1 @susant75 @denny2788 @dididothatt @terrirussell and more.

Josh, have autoimmune disorders been ruled out?