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Anyone have spindle cell sarcoma?

Sarcoma | Last Active: Dec 7, 2022 | Replies (3)
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@amybr

He is doing pretty good right now. We are trying to find out more answers about the surgery & are trying to get a 2nd opinion. Have only talked to the surgeon briefly & he said to remove & replace the sacrum. He & I are very nervous about this & don't want to rush into it without talking to others that may have had the same thing or Dr's that might have more experience with this situation. Lots of praying for a Christmas miracle.

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Colleen Young, Connect Director | @colleenyoung | Dec 7, 2022

It's a good time for miracles, Amy. 🙂

Learning more about your situation made me think of members @wsh66 and @me67, who I believe had sarcoma in the pelvic area, possibly involving either the sacrum or sciatic nerve or both. You can read more about @me67's experience here: https://connect.mayoclinic.org/comment/153585/

I also wonder if proton beam therapy has been discussed as a potential option for your husband. See this Mayo Clinic Q&A interview with Dr. Safia Ahmed, a radiation oncologist at Mayo:
- Proton beam therapy spares surrounding tissue when treating bone cancer https://connect.mayoclinic.org/blog/podcasts/newsfeed-post/proton-beam-therapy-spares-surrounding-tissue-when-treating-bone-cancer/

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