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Mac & Asprillia Niger

MAC & Bronchiectasis | Last Active: Dec 8, 2022 | Replies (6)
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@clynnford

Sue,
Thank you for your reply. The NP was with my ID Dr. and after that initial app. the ID Dr. ordered another sputum culture, I'm on day 2 with that now and have my follow up appointment at the end of the month. My daily symptoms are chest/back pain, night sweats, coughing fits that come and go along with low grade fever & fatigue. Mostly my energy levels are unaffected. My Pulmonologist did perscribe saline for nebbing daily and my PC prescribed abuteral which I use every other day, makes me jittery. However with this, my airway clearance is sooo much easier. Yes, my pulmonary Dr. recommend I watch YouTube videos for these techniques.
From what I have read the Asprilligous seems more serious, yet common as you have described. Sounds like the CT scan is the only tool to really know how bad any of this really is. My next scan is in April....
Respectfully,
Cheryl

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Replies to "Sue, Thank you for your reply. The NP was with my ID Dr. and after that..."
Sue, Volunteer Mentor | @sueinmn | Dec 7, 2022

Hello Cheryl - It sounds like you are in very good hands. As for the airway clearance with albuterol making you shaky, if you are using an albuterol neb, ask about trying an inhaler with a spacer instead - less drug can equal less shakiness. Or an alternative med is levalbuterol, less commonly used because it was a name brand (Xopenex) and very costly - there is a generic now, and it is what I use as my rescue inhaler or neb.
Airway clearance is totally the key to managing bronchiectasis, even though it is a pain to do every day - keep up the good work.
Sue

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