← Return to Mac & Asprillia Niger

Discussion

Mac & Asprillia Niger

MAC & Bronchiectasis | Last Active: Dec 8, 2022 | Replies (6)

Comment receiving replies
@sueinmn

@clynnford Hello, Bronchiectasis and the associated infections are a constantly evolving puzzle for many of us. The answers of which infection to treat and when is "It depends."

You say you had one appointment with the NP - was this in the pulmonology office or at your primary? I ask because there are protocols for treating MAC and aspergillus found in a sputum culture, depending on other findings like symptoms and the condition of our lungs. These may not be well known to someone not well-versed in bronchiectasis, and they may jump right into antibiotic treatment as the first step.

I have been diagnosed on various cultures with aspergillus, MAC and pseudomonas. The aspergillus disappeared on its own - probably with daily nebs and airway clearance, it was an "incidental" finding in one culture. The pseudomonas took 3-4 courses of various antibiotics over 2 months to leave. The MAC was still present after 18 months of the Big-3, at which time my docs & I stopped antibiotics due to their side effects, even though the cultures were still positive for infection. With 7% saline, airway clearance and vigilant control of my asthma & bronchiectasis, I have stayed healthy for 3 years as of next week. My pulmonologist says the CT still looks clear of any obvious pockets/cavities of MAC. A number of people on Connect are like me, we watch and wait to treat, and do airway clearrance.

When you were diagnosed with bronchiectasis, were you instructed in how/when to do airway clearance to help keep your lungs clear?
Sue

Jump to this post


Replies to "@clynnford Hello, Bronchiectasis and the associated infections are a constantly evolving puzzle for many of us...."

Sue,
Thank you for your reply. The NP was with my ID Dr. and after that initial app. the ID Dr. ordered another sputum culture, I'm on day 2 with that now and have my follow up appointment at the end of the month. My daily symptoms are chest/back pain, night sweats, coughing fits that come and go along with low grade fever & fatigue. Mostly my energy levels are unaffected. My Pulmonologist did perscribe saline for nebbing daily and my PC prescribed abuteral which I use every other day, makes me jittery. However with this, my airway clearance is sooo much easier. Yes, my pulmonary Dr. recommend I watch YouTube videos for these techniques.
From what I have read the Asprilligous seems more serious, yet common as you have described. Sounds like the CT scan is the only tool to really know how bad any of this really is. My next scan is in April....
Respectfully,
Cheryl