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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 1 day ago | Replies (865)
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@amybr

I am writing for my husband. He has been diagnosed with Spindle Cell Sarcoma on his sacrum & right side sciatic nerves. He has had 5 rounds of chemo & it has shrunk significantly & now they want to do surgery. We just found out yesterday that they want to remove & replace his sacrum. This has affected his right side & they let us know that he will be able to keep his leg now but will have alot of numbness & will also have to have 2 bags for his bladder & colon. We have lots more questions for them but would like a 2nd opinion from Mayo. Trying to contact someone today.

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Replies to "I am writing for my husband. He has been diagnosed with Spindle Cell Sarcoma on his..."
Colleen Young, Connect Director | @colleenyoung | Dec 7, 2022

Welcome @amybr. This must sound all so frightening to remove and replace the sacrum, and potentially the loss of a limb.

To help you both prepare the ostomies for bladder and colon, you may also wish to join the discussions in the Ostomy support group:
- Ostomy support group https://connect.mayoclinic.org/group/ostomy/

To get started with getting a second opinion at Mayo Clinic, you'll find everything you need here: http://mayocl.in/1mtmR63

You can contact Mayo Clinic by phone and speak directly with a coordinator. Or fill out some information using the online form and request a specific time to be called back by the coordinator.

I'm so glad that his cancer responded well to chemotherapy and that the cancer shrunk significantly to allow surgery to be possible.

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