Liver Cancer Support Group Meeting

Liver Cancer Support Group Meeting

Tue, Dec 13, 2022
6:00pm to 7:00pm ET

Description

The Mayo Clinic Liver Cancer support group meets monthly, on the second Tuesday of the month.  We are currently meeting virtually, via Zoom.  Each meeting will feature a relevant topic and a guest speaker.  Topics have included: financial impact, nutritional and emotional support, symptom and disease management.

Please register for this meeting by emailing the social worker.

After registering, you will receive a confirmation email, which will contain information about joining the meeting.

Location
Zoom

Contact
Abbie Demirbulakli, LCSW, MSW
(904) 953-6831
demirbulakli.abbie@mayo.edu

Location

Online

My husband was diagnosed with Stage 4 HCC-Dec 2021. Check out Fraxini and Fraximus on the NIH website. Targets HCC. Available from Abnoba in Germany who manufactures it. Subcutaneous shots have brought tumor remission in 2 clinical studies. In Egypt they are doing IVs of Fraxini. Also Salicinium called Salicinomycin on NIH blocks metastasis by making the cancer visible to the immune system so Killer T cells and NK cells can target the cancer cells. Dr Warburg won a Nobel Price for this substance in 1931. Also read the Metabolic Approach to Cancer has lots of helpful information on how to turn on tumor suppressing genes.

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My father was diagnosed with Adenocarcinoma metastatic

According to CT scan and Biopsy results shows that it came out from lung

Right now he is on chemotherapy treatment

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@adermsy

My father was diagnosed with Adenocarcinoma metastatic

According to CT scan and Biopsy results shows that it came out from lung

Right now he is on chemotherapy treatment

Jump to this post

@adermsy, please note that I removed the testing results that you posted along with your message as they contain personal medical records and private health information. Mayo Clinic Connect is a public forum for patients and family caregivers to connect and support one another. If you would like to get a second opinion from Mayo Clinic medical experts, you can request a consult. See all the information you need to get started here: http://mayocl.in/1mtmR63

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@shannongail

My husband was diagnosed with Stage 4 HCC-Dec 2021. Check out Fraxini and Fraximus on the NIH website. Targets HCC. Available from Abnoba in Germany who manufactures it. Subcutaneous shots have brought tumor remission in 2 clinical studies. In Egypt they are doing IVs of Fraxini. Also Salicinium called Salicinomycin on NIH blocks metastasis by making the cancer visible to the immune system so Killer T cells and NK cells can target the cancer cells. Dr Warburg won a Nobel Price for this substance in 1931. Also read the Metabolic Approach to Cancer has lots of helpful information on how to turn on tumor suppressing genes.

Jump to this post

I’ve recently seen HCC on my s/o’s medical papers. What exactly is it or where’s it come from? I think but not sure if I’m correct. In all my reading it’s a
Carcinoma cancer and has to do with the liver. Is that correct?
Praying for you all and wishing you well.

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@darlas1967

I’ve recently seen HCC on my s/o’s medical papers. What exactly is it or where’s it come from? I think but not sure if I’m correct. In all my reading it’s a
Carcinoma cancer and has to do with the liver. Is that correct?
Praying for you all and wishing you well.

Jump to this post

HCC is Hepatic (Liver) Cellular Carcinoma. In my husbands case, he was given Hepatitis C by Army vaccines in 1969. when they were using unsterillized needles repeatedly and air gun injections without changing the vials before deployment. Like AIDS it can hide in the body for 30 yrs. Diagnosed in 1992 but no cure available. Interferon was offered but everyone we know who took it died. Given Harvoni "cure" in 2016 but no mention that Harvoni can double your risk for liver cancer and no annual scans ever suggested. While we were moving in 2021 he experienced severe back pain. CT and MRI showed State 4 HCC with primary large 17cm liver tumor and two smaller 6cm tumors invading the spine at L1 and T8 that had fractured both vertebrae. HCC can also be caused by alcohol but my husband could not drink because of the Hepatitis C, so we know the Harvoni poisoned him. Hep C also caused Hepatic Encephalopathy which is when the damaged or infected liver cannot purge ammonia from bacteria breaking down protein which normally exits via urination so the ammonia stays in the blood and burns the brain causing edema (swelling of brain tissues) and extreme headaches which he suffered with for 30 years. Many Vietnam Era Vets have these issues and don't know what is happening to them. They experience memory loss, confusion, behave inappropriately due to the acid from ammonia in their blood burning their brains and ruining their cognitive functions. They don't know why they are psychotic. We had to go to an outside lab to prove he had Hepatic Encephalopathy because the VA was doing the blood ammonia tests wrong. We were able to get the ammonia down to normal levels by severely limiting meat consumption and using L-Arginine and L-Orthinine which is used in Europe. All the U.S. offers is Lactulose which causes diarrhea to pull ammonia out. Now we just have to beat the HCC which the VA says is incurable. Thank you for the prayers and good wishes it keeps us going thru this long nightmare. Thousands of Vets have died from this syndrome, committed suicide or are still suffering with Hepatic Encephalopathy and worse. The VA advertises go get checked for Hep C because it might be hurting your liver, but they do not mention in the ads. it could also be ruining your brain. They also say if you were born between this year and that year on the ads you should be tested for Hep C tests because they don't want to admit it was the vaccines. 64% of Vietnam Era Vets have contracted Hep C whereas 10 % to 14% have contracted Hep C during other wars. It would be so helpful if word could get out this is how veterans are really treated. We are paying out of pocket for the treatments that are keeping him alive now.

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