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For anyone who can't find a diagnosis: Undiagnosed Disease Network
Autoimmune Diseases | Last Active: Jan 27, 2023 | Replies (63)Comment receiving replies
Ah yes, it took a while, but I did apply and they looked at my medical profile. They said about a dozen doctors looked through it.
They said that it seems as if it was an autoimmune disorder so I should check out a Rheumatologist. It definitely set me on the right track.
One MRI later and we found a mass inside my sinus cavity. Turns out it was leaking odd bacterial strains down my throat and threw off my entire gut flora. So one surgery later and a Low FODMAP diet plan and things seem to be getting better.
Had to get in touch with a functional medicine doctor in order to see any improvement tho. No amount of antibiotics, steroids, or pills were working. Sorry it took so long to get back to you.
Replies to "Ah yes, it took a while, but I did apply and they looked at my medical..."
Wow that’s quite a story and you’ve been through a lot! Please take care and keep in touch with me!
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@amandaburnette, thanks for the reply. Glad to know that helped and you are on your way to improvement! Were you actually evaluated by the UDN team, in person? Or did they just consult and suggest the rheumatologist? Did they recommend Functional Medicine or did you decide that on your own? Also, which team of UDN specialists were you working with?
Just as a side note, I was trying to get in with the Duke Medicine UDN group. I had been seen in several specialty clinics at Duke, so decided to ask one of those providers for the referral letter. They turned me DOWN! Actually I thought their excuses were pretty flimsy, so I suspected it was ego-driven in part. I could be wrong, but I certainly did fit the criteria.