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Lichen Sclerosus: Any other women dealing with this disease?
Autoimmune Diseases | Last Active: 3 days ago | Replies (323)Comment receiving replies
I’ve recently been diagnosed with lichen schlerosus by a gynecologist. Only symptom was itching, but visually you could see a figure 8 of white skin. External labia are fused. Six months ago I got a big oval patch (2 ½”) centered just below my breasts. This was biopsied by a dermatologist and is being treated with clobestasol. It appears to make the skin more like leathery tissue paper. A third spot may be developing on my lower torso. Watching and waiting to see if more develop.
Replies to "I’ve recently been diagnosed with lichen schlerosus by a gynecologist. Only symptom was itching, but visually..."
@gingerbear22 you had asked about finding a doctor who knows about autoimmune diseases. Here are some resources
https://mayoclinic.org/about-mayo-clinic/care-network/members. This site lists the hospitals that work closely with Mayo Clinic. Called Mayo Clinic Care Network
Also try ‘medical centers of excellence’ and look for one nearby
Another member said she called the Mayo Clinic and asked for Mayo educated doctors in her area.
Let me know what you learn!
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Update. The discoloration has spread to both sides of my torso and, though I cannot see it, I believe my back is affected. Seeing dermatologist in a few weeks. Isn’t there a systematic treatment. Difficult to out chlobetasol everywhere.